By participating in the RUDY Health Study, you will be helping to advance the understanding of rare conditions.
Before anybody can take part in medical research they need to give their informed consent. We ask you to carefully read our information sheet, and then register on the website.
The RUDY Study is open to those with rare disorders, as well as their blood relatives and partners. If you are under 16, you are welcome to register yourself on the RUDY website, but we will need to talk to your parents and get their consent before you can take part fully.