A national registry of autoimmune vasculitides
The UKIVAS registry is a component of the The Vasculitis Rare Disease Working Group of the UK and Ireland. It’s aims are to ethically and robustly create a database of patients with systemic vasculitis attending numerous centres across the British Isles and to archive longitudinal clinical data to build up a picture of clinical course over time. The long term vision is to link these data to carefully processed clinical samples. This infrastructure will facilitate large scale genetics and epidemiology studies, enable ready identification of cohorts for potential recruitment to clinical trials and biomarker evaluation studies, allow multi-centre audit of expensive biologic therapy use and inform rational service delivery development for this complex group of patients.